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Patients & Community

Patients & Community

About Medical Research

Frequently asked questions about clinical research, the study of health and illness in people.

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Why Research Matters to Me

News and information about Hennepin Healthcare Research Institute's research

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Volunteer for a Study

Information to help you decide if you want to take part in a clinical research study.

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Patient Advocacy

Find out how Hennepin Healthcare protects patients participating in clinical research studies.

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Questions, Complaints, or Feedback

The Human Research Protection Program welcomes your questions, concerns, and/or feedback.

If you are a research participant and would like to discuss problems, concerns, or questions about a study, or your rights as a participant in a research study with someone other than the study Principal Investigator, please contact the Hennepin Healthcare Human Research Protection Office (HRPO).

Anyone can submit feedback, including research participants, family members, or others. To offer feedback about your experience in a research study or provide suggestions for the Human Research Protection Program, please contact us at HRPO@hhrinstitute.org, (612) 873-6881 or complete the online Feedback Form: www.surveymonkey.com/r/ZN5JJJ2.

Useful Links

Websites

Hennepin Healthcare and the Hennepin Healthcare Research Institute are committed to improving patient care and the health of our community through research and education. For the past year, Hennepin Healthcare has been working with new independent community boards to bring more transparency to how and why we conduct medical studies and how we serve the community. As part of this work, new resources are being created and shared to provide insight into what we've learned thus far and our commitment to partnering with the patients and families who rely on us for quality healthcare.  We are sharing those resources below and we also continue to make the reviews and reports available for all to read.

Go to Research Community Resources on hennepinhealthcare.org

Watch the Rebuilding the Community Trust video on YouTube

Watch the Research By and For Our Community video (English)

Watch the Research By and For Our Community video (Spanish)

The Department of Health and Human Services' Office of Human Research Protections (OHRP) website provides resources for the public to learn about participating in research and making informed decisions.  The site includes videos, information and other tools. 

About Research Participation (English)

Acerca de La Participación en Las Investigaciones Científicas (Spanish)

La Oficina de Protecciones para la Investigación Humana (OHRP, en inglés) es encargada de proteger los derechos y el bienestar de los participantes voluntarios en investigaciones científicas que sean auspiciadas por el Departamento de Salud y Servicios Humanos de los Estados Unidos (HHS, en inglés). Una de las maneras en que OHRP desarrolla esta misión es proveyendo al público de datos básicos acerca de lo que son las investigaciones científicas y lo que significa participar como voluntario en las mismas, para que aquellos que estén considerando participar puedan tomar una decisión más informada.

Entender lo que significa participar como voluntario en investigaciones científicas puede ser difícil. OHRP ha desarrollado y recopilado la materia siguiente para ayudarle a usted y a sus familiares a tomar una decisión.

En los siguiente enlaces podrá ver algunos videos informativos y una lista de preguntas para que las discuta con el equipo investigativo.

Acerca de La Participación en Las Investigaciones Científicas (Español)

About Research Participation (Inglés)

Learn what is a clinical study, who conducts them, reasons for conducting them and more in this online resource from the US National Library of Medicine.

Visit the NIH US National Library of Medicine website

Glossary of common terms associated with clinical research trials from the National Institutes of Health (NIH).

View NIH's glossary of common terms

Videos

Dr. Griffin P. Rodgers, director of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health, explains the importance of participating in clinical trials and encourages the public to consider joining, especially those who are underrepresented in clinical trials.

Watch the video on YouTube

OHRP has created a series of short videos with basic information about research. These videos are intended to help potential participants understand how research works, what questions they should consider asking, and things to think about when deciding whether to participate in a study.

Informational Videos (English)

Videos Informativos (Spanish)

La Oficina de Protecciones para la Investigación Humana ("OHRP", en inglés) ha creado estos cortos videos que contienen datos básicos acerca de las investigaciones científicas. El propósito de estos videos es ayudar a quien esté considerando participar en una investigación a entender mejor como las investigaciones funcionan. Además, aquí se le presenta ciertos asuntos que debe de considerar y ciertas preguntas que debe de hacer antes de decidir si participa o no en una investigación científica.

Videos Informativos (Español)

Videos Informativos (Inglés)

PDFs

Guide to clinical research studies from the National Institutes of Health (NIH). Describes the differences between observational studies and clinical trials. (downloadable PDF) 

View Why Do Researchers Do Different Kinds of Clinical Studies?

Protecting Patients

The Office for Human Research Protections (OHRP) is a department within the DHHS that protects the rights, welfare and well-being of people who participate in clinical research trials.

In a recent blog, Adm. Brett P. Giroir, MD, writes about OHRP's About Research Participation initiative to provide accessible informational for potential research participants. The About Research Participation website contains resources for the public in English and Spanish to learn about participating in research and making informed decisions.

Stay up-to-date on HHRI happenings

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